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[personal profile] iopha
We saw our pediatric neurologist today. It was a short visist. He has no significant concerns and wants to follow-up in another 12 months. He seems to to think there's a good chance Wren will be fine growing up.

This is true for about 10-15% of children with stage II HIE. The good doctor was rather amazed. We got lucky, I guess.

Tube's still going in. Didn't help my constant second-guessing and nerves that the neurologist seemed surprised we were moving forward with this. He seemed a bit more understanding when we explained our ongoing feeding difficulties (low solid intake, refusal to bottle feed, etc.) but fuck I still hate it. I can hold on to this, though.

Date: 2011-12-13 12:33 pm (UTC)
From: [identity profile]
That's awesome! Good news!

Date: 2011-12-13 09:06 pm (UTC)
From: [identity profile]
That is terrifically awesome news!!!

On the food front, as you know, we have a *tremendous* amount of trouble feeding L. And she didn't have a birth trauma. Apart from the sleep sucking, are you certain that it isn't just fussy eating habits? I'm really not trying to get you to second guess because I know how crazy a decision this is for you. I just want to understand!

Date: 2011-12-28 05:01 pm (UTC)
From: [identity profile]
Apart from the sleep sucking, are you certain that it isn't just fussy eating habits?

No, I mean, part of the problem is that we can't separate out what is 'normal' from what is 'trauma'. I'm pretty convinced some of it is just typical baby fussy-ness: when she likes something and is hungry, she eats her solids just fine. We didn't have much of a margin of error, though, since she always flat-out refused the bottle and is only now starting to get the hang of cups. She dropped from 75th to 25th percentile in weight over a few months; we just didn't see solid food progressing rapidly enough to make up for her diminishing milk intake.

What we might have done is just stop sleep-feeding entirely and try going entirely on oral solid food eating and see how that goes. Then the problem would have been dehydration before malnourishment. She was always constipated and just couldn't, or wouldn't, drink enough. I don't know. Maybe it would've worked. It was a tough fucking call. At the end of the day we were too tired, too stressed, and too uncertain to try and make the transition to solid foods without having the 'safety net' of the feeding tube. Now that it's in, that she's used to it, it feels like it was the right decision.

But of course it is a well-known psychological phenomenon that humans tend to justify their previous decisions once they've been made, so who knows?

Edited Date: 2011-12-28 05:01 pm (UTC)

Date: 2011-12-13 10:40 pm (UTC)
From: [identity profile]
fantastic news!

Date: 2011-12-13 10:59 pm (UTC)
From: [identity profile]
Yay! :D *Hugs all around*

Date: 2011-12-13 11:32 pm (UTC)
From: [identity profile]
:) so happy to read this.

Все отлично сделано!

Date: 2012-01-31 06:24 am (UTC)
From: [identity profile]
Занятно. Ждем новых сообщений на эту же тему :)Image ( (

Супер блог!

Date: 2012-01-31 06:24 am (UTC)
From: [identity profile]
Если не секрет, дорого обошлось создание блога? Тоже хочется попробовать вести своё что-нибудь.Image ( (

Занятный блог

Date: 2012-02-17 01:38 pm (UTC)
From: [identity profile]
Тут кто-нибудь разбирается в радио? Нужен коллега, который рассказал бы вкратце о транзисторе Т2 (не понятно как проверить гв = гв1). Надеюсь, радиолюбители тут “водятся”. Если не по теме совершенно, то извините. Вынужден написать, выхода просто не вижу. ЗЫ: если орфография не правильная то тоже извините, мне 13 лет только.Image ( (

Благодарю за информацию

Date: 2012-02-17 01:40 pm (UTC)
From: [identity profile]
Качественный блогImage ( (
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